After 11 Years of Trying, Our Daughter Was Finally Born—Then We Learned She Had Hutchinson-Gilford Progeria Syndrome. My Husband Said He Couldn’t Raise a Child We Might Lose So Young… and I Made the Decision I Still Can’t Forgive Myself For

Daniel pressed the letter against his chest and cried harder than I had seen him cry since the day we learned I was pregnant.

Sometimes I still think about that hospital entrance all those years ago.

I think about how close we came to getting into the car.

How close I came to allowing fear to make the most important decision of my life.

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And I think about the little girl waiting upstairs, completely unaware that her parents were deciding whether loving her would hurt too much.

Sophie’s life was shorter than I wanted.

I would have taken another year, another month, another morning with her if someone had offered it to me.

But when I remember those sixteen years, I no longer think first about the disease that took her from us.

I remember the little pink cardigan.

Her hand wrapped around Daniel’s finger.

The way she yelled “Mama” when I walked into a room.

The seventeen candles on her sixteenth birthday cake.

And the sentence she left behind for the two frightened parents who had once almost walked away from her:

“Thank you for choosing me even though you knew you might lose me.”

For eleven years, Daniel and I believed our greatest pain was not being able to have a  child.

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We were wrong.

Our greatest fear became losing the daughter we finally had.

But Sophie taught us something neither of us understood when she was diagnosed: