After 11 Years of Trying, Our Daughter Was Finally Born—Then We Learned She Had Hutchinson-Gilford Progeria Syndrome. My Husband Said He Couldn’t Raise a Child We Might Lose So Young… and I Made the Decision I Still Can’t Forgive Myself For

Sophie shrugged.

“My daughter.”

She smiled.

“That’s it?”

Daniel kissed the top of her head.

“That’s everything.”

As Sophie grew older, we told her more about her condition. We never wanted her to discover the truth from another  child or from something she found online.

Child Care

By thirteen, she understood that her life might be shorter than most people’s.

One evening, she asked us the question Daniel had feared since the day of her diagnosis.

“Am I going to die young?”

Daniel’s hand tightened around mine.